After the boy became the first person in the country to be granted a licence for the drug last June – as a special case before the law change – his mother revealed how he was living seizure-free and learning to ride a bike.
But now the eight-year-old has grown used to the strain of the treatment and has begun to have fits again. Hannah Deacon says her son needs a new strain to be able to cycle between two products to overcome his tolerance – but because of the UK’s strict rules importing it into the country could take months.
It has lead her to post a tearful video to Twitter to beg for change in the system.
“The receptors get dulled by the same strain of THC